For the past 3 months, I’ve been using Timolol Maleate 0.5% eye drops, which are prescribed to treat Vestibular Migraine (VM). My neurologist prescribed them with the hope that by reducing my VM symptoms, my MdDS symptoms would also decrease. He recommended using one drop in each eye twice daily for symptom prevention, and an additional dose at the onset of a migraine or during an increase in dizziness or vertigo.
For the first month, I didn’t notice much of a difference in symptoms with regular use. I did recognize that the drops took an edge off any head pain, so I kept using them.
Then, one day, my visual field started swaying violently, back and forth like a boat, and I put the drops in. Just like that, the visual motion calmed down significantly. I was so relieved!
A few days later, it was storming, and I picked up a book to try to read. The words were moving in a U shape, making it impossible to focus on any word. I went and put the eyedrops in, and like magic, the motions calmed down enough so I could read again!
Before the eye drops, I was unable to work on a computer or read when I would have these “episodes.” Having the drops has been a total game changer! The other medicines I had tried for migraine or dizziness attacks made me too tired to function, but with the drops, I could go on with my day.
After about 6 weeks, I would estimate that using the drops resulted in a 10% decrease in the feeling of rocking, bobbing, or swaying caused by MdDS.
They don’t work perfectly, and there are times I still need to use a stronger rescue medication, but I have to say, these drops have significantly improved my quality of life. I love that they are portable, I can use them anywhere at any time, and that I haven’t had any side effects from using them.
I hope that they might help you, too!
In the early days, pushing through my highest symptoms, one thought always prevailed: “How do I live like this?” I asked medical professionals, and I got some prescriptions, but it was never enough to actually help me get through the day-to-day struggle. The best ideas and strategies were from my friend, Kelly.
Kelly and I have exercised together every week since we first met. The first time we hung out, we did a 10 mile run! After my MdDS onset trip, our “exercise” sessions turned into slow walks. Kelly accompanied me and listened to me talk about all the strange symptoms and sensory issues I was experiencing for months.
The amazing thing about Kelly is that for every one of my new challenges, she gave me a strategy or work-around to try. She is an occupational therapist and has specialized training and experience in helping people with vision and sensory issues, daily activities, fine-motor skills, and so much more.
I’m a speech-language pathologist, and although I love my career, the sensory aspects of my work environment (lights, crowds, noise, visual motion, patterns) were very draining. I needed a change.
I wanted to continue helping people with cognitive, learning, and communication needs, and spend more time helping people with vestibular disorders. I’ve dedicated so much time to studying dizziness, vertigo, and migraine in my own quest for healing, and I wanted to use what I’ve learned and experienced to be a catalyst for positive change in the lives of others.
I decided to create my own job. I want to be the person that helps answer the question, “How do I live like this?” for other people struggling to get through the day. I knew that if I was going to do it right, I would need Kelly with me. Luckily, she agreed!
I’m excited to announce that we are launching our business, Solutions for a Better Day! We want to coach you through difficult times and give you actionable steps, strategies, and support to reach your goals despite the dizziness.
If you would like to learn more or are interested in scheduling a phone call or video chat session with us, please visit our website or message me! I’d love to meet with you!
Wishing you wellness and stillness as always!