Unfixed: A Documentary About MdDS and Other Chronic Conditions

I am so excited about this documentary! It was created by Kimberly Warner, a filmmaker with Mal de Debarquement Syndrome. Not only does it feature her story, but also the stories of others with MdDS and Vestibular Migraine! The description and visuals at the beginning are dead on, and worth showing to friends and familyContinue reading “Unfixed: A Documentary About MdDS and Other Chronic Conditions”

Two Years Without Land Legs

Two years without land legs, and this is what I’ve learned: Treatment for vestibular migraines has helped my MdDS symptoms. I was diagnosed this year with vestibular migraines (in addition to Mal de Debarquement Syndrome), and I’m really thankful I sought out another opinion.  Being labeled with the official diagnosis motivated me to do moreContinue reading “Two Years Without Land Legs”

A Break in the Waves: The Cefaly

After trying the Timolol Maleate eye drops for 6 weeks, I was feeling a lot better, but I was still getting migraines (in addition to the sensation of constant rocking/bobbing/swaying, of course).  For me, “migraines” mean head pain, brain fog, vertigo, visual auras, bursts of tinnitus, and numbness. I was still experiencing constant light sensitivity,Continue reading “A Break in the Waves: The Cefaly”

New Treatment and New Gig

New Treatment For the past 3 months, I’ve been using Timolol Maleate 0.5% eye drops, which are prescribed to treat Vestibular Migraine (VM).  My neurologist prescribed them with the hope that by reducing my VM symptoms, my MdDS symptoms would also decrease. He recommended using one drop in each eye twice daily for symptom prevention,Continue reading “New Treatment and New Gig”

My Top 3 Coping Strategies Right Now

These coping strategies have been helping me lately and guiding my quarantine self-care: I make my exhales longer than my inhales.  It’s super simple.  I can do it anywhere at any time!  It helps keep my stress levels down and helps me relax and fall asleep when symptoms spike.   I ask myself:  If I wasContinue reading “My Top 3 Coping Strategies Right Now”

Adjusting the Sails

Mal de Debarquement Syndrome creates a lot of daily challenges.  The “boat sensations” are constant, and I’ll get caught off guard by random spins or pulls, a flare-up of symptoms, dizziness with head movements, or head pain.  I decided to stop taking any and all prescriptions for a while, which has made the seas lessContinue reading “Adjusting the Sails”

Between the Devil and the Deep Blue Sea

To boat or not to boat? That was the question on my mind as summer was fast approaching. Most people said, “Are you crazy? Why would you want to go on a boat?” I probably am crazy, but something about being told I could never go on a boat again made me want to doContinue reading “Between the Devil and the Deep Blue Sea”