New Treatment and New Gig

New Treatment For the past 3 months, I’ve been using Timolol Maleate 0.5% eye drops, which are prescribed to treat Vestibular Migraine (VM).  My neurologist prescribed them with the hope that by reducing my VM symptoms, my MdDS symptoms would also decrease. He recommended using one drop in each eye twice daily for symptom prevention,Continue reading “New Treatment and New Gig”

My Top 3 Coping Strategies Right Now

These coping strategies have been helping me lately and guiding my quarantine self-care: I make my exhales longer than my inhales.  It’s super simple.  I can do it anywhere at any time!  It helps keep my stress levels down and helps me relax and fall asleep when symptoms spike.   I ask myself:  If I wasContinue reading “My Top 3 Coping Strategies Right Now”

Adjusting the Sails

Mal de Debarquement Syndrome creates a lot of daily challenges.  The “boat sensations” are constant, and I’ll get caught off guard by random spins or pulls, a flare-up of symptoms, dizziness with head movements, or head pain.  I decided to stop taking any and all prescriptions for a while, which has made the seas lessContinue reading “Adjusting the Sails”

Between the Devil and the Deep Blue Sea

To boat or not to boat? That was the question on my mind as summer was fast approaching. Most people said, “Are you crazy? Why would you want to go on a boat?” I probably am crazy, but something about being told I could never go on a boat again made me want to doContinue reading “Between the Devil and the Deep Blue Sea”

One Year Without Land Legs

After one year without land legs, this is what I know for sure: It gets better.  It gets easier. Hard to believe, but it really does.  My progress has been very slow. It took months to see notable improvements.  Recovery hasn’t been linear. I still rock, bob, and sway, but day to day I feelContinue reading “One Year Without Land Legs”

Steering My Ship in the Right Direction: Mount Sinai

There are not a lot of treatment options available for people with Mal de Debarquement Syndrome. There is only one evidenced-based treatment proven to successfully diminish or eliminate symptoms in most patients. The treatment is VOR (vestibulo-ocular reflex) readaptation, which is only done at The Mount Sinai Hospital in New York City. Preparing for TravelContinue reading “Steering My Ship in the Right Direction: Mount Sinai”

Six Months at Sea

The Voyage Continues After about 3 weeks thinking I was headed for land (metaphorically), a snowstorm came (literally). I started getting a migraine more intense than the usual head pressure, with a sharp pain on the right side of my head. The migraine lasted for days. With each day, more and more symptoms reemerged –Continue reading “Six Months at Sea”