There are not a lot of treatment options available for people with Mal de Debarquement Syndrome. There is only one evidenced-based treatment proven to successfully diminish or eliminate symptoms in most patients. The treatment is VOR (vestibulo-ocular reflex) readaptation, which is only done at The Mount Sinai Hospital in New York City. Preparing for TravelContinue reading “Steering My Ship in the Right Direction: Mount Sinai”
Making light of a boat situation! I hope you enjoy these MdDS-themed memes!
The Voyage Continues After about 3 weeks thinking I was headed for land (metaphorically), a snowstorm came (literally). I started getting a migraine more intense than the usual head pressure, with a sharp pain on the right side of my head. The migraine lasted for days. With each day, more and more symptoms reemerged –Continue reading “Six Months at Sea”
The reason I first decided to write and share my Mal de Debarquement Syndrome experience was because I was curious about how other people’s symptoms changed over time. I figured other people with MdDS might be interested in that same thing. It is hard not knowing what to expect. My post about my symptoms andContinue reading “Land, Ho?”
Here are some things that seem to help me, listed in order of helpfulness, from somewhat helpful to definitely helpful. (Please note that I am not a doctor and these are not recommendations. However, I do hope readers can find something on this list that could help them, too! I am so grateful to theContinue reading “Staying Afloat: Things That Help”
Mal de Debarquement Syndrome is truly an invisible illness. If you didn’t know me well, you wouldn’t know anything was wrong with me. My symptoms are all in my brain, so they aren’t outwardly noticeable. In the past 4 months, I’ve recovered enough that I can do most of my usual daily activities. It isContinue reading “Landlubber: My Symptoms”
The vacation where it all began.
What does it feel like to have Mal de Debarquement Syndrome?